Wednesday, June 30, 2010

Tuesday, June 22, 2010

10 Things Tuesday

Alas Tuesday has once again crept up on us!

  1. Seizures suck!
  2. X is having his first day with cousin's to hoping he plays nice & doesn't scare her away lol
  3. Toofy #2 is on the horizon
  4. The Bean's dinner last night consisted of ice cream with apple & blueberry baby food on top...he ate it all so I'm OK with that
  5. X got some demo equipment in the past week.  We are looking at a stander, a supportive seat, and hopefully the Leckey Squiggles Early Activity System
  6. Damn these things are expensive
  7. I really need to get better at uploading pictures!
  8. After, oh, what 14 months, X finally has a car seat in Mommy's car.  Now we can zip around in the Focus and not Daddy's bohemoth.
  9. X had his second session of CranioSacral Therapy.  It's really cool!
  10. Can't wait to have a family getaway!

Tuesday, June 15, 2010

10 Things Tuesday

Because I got yelled at for slacking...(just kidding Amy!)

  1. We've started our "no laying around summer"...2 trips down hopefully others to come
  2. Our biggin is up to 17.5lbs, 28.5 inches! Back on the chart baby!
  3. Mission sippy cup is in full effect; it's quite hard to find the 'right' one
  4. I wish people would stop staring...evidentally they were never taught that it's rude or if you have a question to just ask.  Do I have to scream from the mountain top that yes my kid is different! (But aren't we all)
  5. A certain little boy sure does love watermelon & cottage cheese
  6. There's soon to be a new car so Xavier can ride around in style
  7. A certain Mommy sure does want a cool new stroller for her cool new car
  8. As Anthony put it, our basement looks like a baby training facility (pictures to come to prove this point)
  9. We both believe someone is breaking into our house at night and wrecking it.  Two people, a little one, a dog, and a fish surely can't make this much mess right?
  10. Going to the therapist and having nothing to talk about is a great thing!!

Thursday, June 3, 2010

Does the end of this stick smell funny to you?

Some friends have mentioned the other blogs that I have listed. Believe me, I know they all tug at heartstrings.  While they might not always be sunshine and roses I read them because I can relate to them.  Sure we aren't all going through the same thing-Xavier doesn't have Prader-Willi Syndrome or Down Syndrome, he wasn't a micro-preemie, nor is he battling cancer.  But our family, along with those families, share the (unwanted) bond of going through things we never planned for nor would ever want.  In a strange, weird, voyeuristic way it helps to read about other families; both their happy times and ones that aren't so. 

I know our road has been far from smoothly paved.  But with all its potholes, detours, and maybe a flat tire or two the road has led us to a wonderful destination.  One of a growing, happy, smiley, little boy.  I would give anything to change the road he's had to travel (and will travel for the rest of his life) but I wouldn't change him.  Those big eyes when you can tell he's really interested in something, a huge smile when he thinks you're funny (word is still out on who's funnier-Mommy or Daddy), little puckered lips when something just isn't tasting too good.  And our destination is ultimately this--acceptance.  Which I think we've cruised into nicely if I may say so myself.

That might be a mish-mash of words above but it brings me to the title of this post.  Basically X and the children in the other blogs I read got the shitty end of the stick.  Yep, I said that.  I don't believe that things happen for a reason.  I believe in science, genetics, screwed up chromosomes and the like.  Children aren't born with syndromes or have to face cancer or go through surgeries because it's supposed to "be".  They are clean slates-perfect, untouched, pure.  And in no way do I believe my God or anyone's God chooses to put children through such a tough life.  That's where the science comes in for me.  I know this sounds totally opposite of the post below about the mother of a preemie.  I don't think God doles out cards so simply; we all have to play the hand we are dealt but I don't believe there's a big crappy pile just waiting to be shuffled.  For me, the heart of that post is that these children and us, their parents, are remarkable and strong.  And sometimes we (parents of these children) may forget that.  We have to give ourselves some credit sometimes too.

So, all that being said, shitty roads and shitty sticks aside, I guess what I'm trying to say is that if you choose to read our blog or any of the blogs I've linked share in the joys & sorrows.  Laugh with a funny post and feel sad with one that talks about set-backs.  In the end, that's what we've got--each other. 

Wednesday, June 2, 2010

Cover Model!

We did it! Xavier made the cover!  Thank you to everyone who made very generous donations to such a great cause.  Visual Concepts Photography raised over $10,000 for the AAMC NICU & Peds Dept!!  How amazing is that?!  Just from the voting of the 35 little ones!  We are so happy that Xavier can not only represent NICU babies but also children with special needs!

I will be sure to share when calendars go on sale.